National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Patient Networking Program
NORD maintains a confidential Networking Program for its individual members. The goal is to stimulate the exchange of information and mutual support for patients and their families. NORD members who choose to participate will be given the opportunity to communicate with others who have the same disorder. The Networking Program also encourages the formation of mutual self-help support groups. Networking is limited to patients and their families. It is necessary to be a Member of NORD to participate in Networking. Learn more about becoming an individual member.
Download the Patient Networking Registration Form.
for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968