Canadian Ectodermal Dysplasia Syndromes Association (CEDSA)
Ectodermal dysplasias are a large group of inherited disorders that result in abnormal development of the skin, hair, teeth, nails and glands together or in combination. To date, more than 150 distinct disorders have been described but due to the variance in genetic conditions, there are likely many more types of EDS. The most common ectodermal dysplasia is Hypohidrotic ectodermal dysplasia (HED), characterized by a reduced ability to sweat.
The Canadian Ectodermal Dysplasias Syndromes Association (CEDSA) will act as the national information and resource centre on provincial and territorial funding programs, medical expertise, ongoing research and support groups. Working with established ectodermal dysplasias associations around the world, CEDSA will support research towards a cure, raise awareness of EDS and connect children, youth, family and friends seeking support and a place to share information.