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This searchable wiki provides descriptions and links to a wide range of services. It is searchable using key words that are listed for each entry.
This wiki is also user editable to enable parents to keep all of us up to date about current services. Most lists of health, educational, and social services are out of date by the time they are published. Keeping them up-to-date could be a full time job. We hope that you will help us to provide up to date information and commentary about the services you find useful.
You are also encouraged to add articles and provide links to services that are not already listed.
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Would it be possible to add a link to Spinal Bulbar Muscular Atrophy (aka Kennedy's Disease), an x-linked adult onset form of muscular dystrophy affecting 1: 40,000 adult males (or approx. 375 men in Canada)
would it be possible to add a reference to mendelian.co as a tool to help in rare disease diagnosis?
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