Examining the Unmet Health and Service Needs of Families of Children with Rare Diseases

Examining the Unmet Health and Service Needs of Families of Children with Rare Diseases

Are you the Parent of a child with a rare disease?

Invitation to Participate in a Nursing Research Study

We are conducting a study to learn more about the unmet health and service needs of families of children with rare diseases. If you choose to participate, you will be interviewed about your experiences at a time and place that is convenient for you. You will be given a $20 gift card in appreciation of your time.

Recommendations from this study may help improve healthcare providers practice with families like yours.

For more information contact:

Dr.Jennifer Baumbusch:
604-­‐822-­‐7496
gero@nursing.ubc.ca


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