Vancouver Area Parent 2 Parent Resource Network
This Month's Topic for Discussion: Getting Support for your Child and Family in your Community
The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.
This Month's Discussion Topic: Getting Support for your Child and Family in your Community
What programs do you rely on? What programs do you need? Do you have medically complex child? What is your experience with programs in your community such as Nursing Support Services and the At Home Program? How responsive have programs been your needs? How can they be improved? Come and share your insights and experiences.
Light refreshments will be provided at the meeting.
New parents are always welcome.
****Note the change in location for this meeting only****
Room KO-155, Ambulatory Care Building
BC Children's Hospital Campus
950 West 28th Avenue