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Alongside You at Rare Finds YVR Event

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DELTA, British Columbia, May 2, 2017 — On April 8th, 2017, the Rare Finds YVR: Feast for the Senses event took place. $111,000 was raised in support of the Rare Disease Foundation in its mission to help Canadians living with rare diseases. Andrew and Meg Neufeld, co-owners of the award-winning health agency, Alongside You, were in attendance.

“Life is full of challenges. Help me understand mine.” – Max

As Andrew and Meg stared at this quote during the gala, it made them ponder the question: How well do we, as Canadians, understand the needs of this crowd that has often been overlooked by the public?

Meg grew up with an identical twin sister with a rare form of dwarfism and profound hearing loss. From an early age, they knew they were rare: 1 of 7 in the world at the time. Through their journey as a family, their father co-founded the Rare Disease Foundation with friends and colleagues and set out to change the course of research and treatment for rare diseases

Throughout their professional lives, Meg and Andrew have been intimately involved in supporting families, many of whom struggle with health conditions, including rare diseases. As pleased as they are to be able to provide support to individuals and families through the health disciplines at Alongside You, they know that the work of the Rare Disease Foundation has the potential to change health outcomes for individuals with rare diseases, and greatly relieve stresses on their families by identifying rare conditions and developing treatments — a chance to impact the individuals and families much earlier on in life and be proactive against many of the stresses these families face.

This is why supporting the Rare Disease Foundation is so important to them — because their awareness of the impact isn’t just professional, it’s family.

In order to participate in the mission of furthering Rare Disease awareness, Alongside You was involved with the Rare Finds Gala in several profound ways. They have donated gift baskets of art supplies and classes at their studio — a safe and comfortable environment for anyone of any age, diagnosis, or ability to experiment with different art mediums. They have also donated a Birkman Assessment and coaching session package through Immerse Consulting, a subsidiary of Alongside You.

But that is only the tip of the iceberg. Alongside You is also a proud provider of a $3,500 Microgrant to the Rare Disease Foundation. The microgrant program provides a small amount of funding ($3,500) that must accomplish a specific research goal and directly improve patient care.

“The grant will go to researchers eager to solve problems for today’s patients in just 4 weeks’ time,” according to the Rare Disease Foundation.

This is why Alongside You, as a local business, believes that any small- to medium-sized businesses can make an immediate impact on finding cures for rare diseases. They sincerely hope that their story would encourage fellow small business owners to take action, and provide microgrants to support the wonderful things the Rare Disease Foundation is doing for millions of Canadians affected by rare disorders.

About Rare Disease Foundation

Founded in 2008, the Rare Disease Foundation is a registered charitable organization supporting rare disease research internationally, with a majority of that research taking place in Canada.

Their Vision and Mission is to revolutionize rare disease care through the creation of communities of patients, caregivers, healthcare providers, researchers and supporters working together to transform the lives of those living with rare disease.

About Alongside You

Alongside You is an award-winning, integrated health agency in the heart of Ladner, BC, and they serve a wide range of clientele in Ladner, Delta, Vancouver, Richmond, Surrey, Langley and surrounding areas. They provide accessible health care to anyone in their communities, because people matter.

If you would like more information about what Alongside You is doing in the community, please contact Andrew Neufeld at 604.283.7827 ext. 701, Meg Neufeld at ext. 703, or email them at info@alongsideyou.ca

Mom paying it forward Tackling Mudderella in support of Rare Disease Foundation Erin McPhee / North Shore News September 20, 2015 12:00 AM

North Vancouver's Allison Jones knows all too well the benefits of a supportive community.

A mom to a four-and-a-half year old with two rare conditions, Jones is grateful to her peers, other parents of children with special needs, whom she's come to know through her ongoing involvement with the Rare Disease Foundation's family and patient support programs.

That commitment to supporting others will no doubt come in handy when next Saturday, Sept. 26, Jones and her team of eight other women will tackle the Whistler Mudderella, a non-competitive, five to seven mile long, muddy, obstacle course designed by and geared primarily towards women.

"Our motto is: We start together, we finish together. So if we have to slow down, we slow down for a teammate, but we're going to finish together," says Jones, 43, a married mother of three boys. More than about finishing the gruelling course, Jones and her team have dedicated their participation to the Rare Disease Foundation and are using it as a means of raising funds and awareness. "Meeting the parents at the Rare Disease Foundation, I couldn't have gotten through a lot of it without their support. They've become almost like a second family.. .. All of the programs that they do for the families, I just want to keep it going. Anything we can do to help, I'm all over it," she says.
- See more at: http://www.nsnews.com/living/health-wellness/mom-paying-it-forward-1.2063690#sthash.7FUabDJ3.dpuf

Juan Flechas is honouring his deceased brother Cristian David by competing in the Mont Tremblant IronMan. Check out his short video here!

This morning Dave Proctor started his 66 day journey across the country and we need you to help him along the way. Participate in person at one of Outrun Rare events being held along the way or virtually by submitting a video that will encourage him to keep on running across the country.

Fund Development and Community Engagement Coordinator

Photo of David CoxOffline
June 22, 2018

CTV National Interviews Dave Proctor

David CoxIn the news

Interview with Dave Proctor of Outrun Rare...the cross Canada record breaking attempt that begins June 27 in Victoria, BC!

This summer Dave Proctor will be running across Canada to raise funds for the Rare Disease Community his family is a part of. He is appealing for our help to get him moving every morning. Here's your chance to be a part of it!

Photo of David CoxOffline
May 10, 2018

Railtown Cafe Award

David CoxIn the news

Chef Tyler Day accepts an award at the Rare Disease Foundation's annual Rare Finds Gala in Vancouver on April 26. The award marks 5 consecutive years of commitment and participation by Tyler and his partner, Chef Dan Olson of Railtown Cafe.

Kyle Anderson is the owner of two Browns Social House restaurants in White Rock and South Surrey, BC. His newest location opened last week at Grandview Corners (160th St. and 24th Ave). When Kyle decided to have a live staff training exercise at the new location, he invited dozens of family and friends of his staff to attend the event along with his own extended family & friends. Kyle picked up the food and beverage tab and collected tips and donations from the crowd, which he then donated to the Rare Disease Foundation. He personally topped up the donation to $5,000 and is seen here presenting the cheque to Executive Director David Cox.

Photo of David CoxOffline
April 2, 2018

CBC Radio Interview on Medical PTSD

David CoxIn the news

Have a listen to our Board Chair, Isabel Jordan being interviewed on CBC Radio about medical PTSD and it's relationship to parents and patients affected by rare disease.

Photo of Isabel JordanOffline
November 20, 2017

Benefit Brew from Phillips Brewing

Isabel JordanIn the news

We're a top 10 finalist in Phillips Brewing and Malting Company Benefits Brew contest and we need our community to click us to the top!

Photo of Isabel JordanOffline
November 2, 2017

10th Annual Lace Up for Kids! - how to participate

Isabel Jordan

It's almost time for LaceUp - here are some tips on how to participate for this wonderful annual event!

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Juan Flechas is honouring his deceased brother Cristian David by competing in the Mont Tremblant IronMan. Check out his short video here!

This morning Dave Proctor started his 66 day journey across the country and we need you to help him along the way. Participate in person at one of Outrun Rare events being held along the way or virtually by submitting a video that will encourage him to keep on running across the country.

Fund Development and Community Engagement Coordinator

Photo of David CoxOffline
June 22, 2018

CTV National Interviews Dave Proctor

David CoxIn the news

Interview with Dave Proctor of Outrun Rare...the cross Canada record breaking attempt that begins June 27 in Victoria, BC!

This summer Dave Proctor will be running across Canada to raise funds for the Rare Disease Community his family is a part of. He is appealing for our help to get him moving every morning. Here's your chance to be a part of it!

Photo of David CoxOffline
May 10, 2018

Railtown Cafe Award

David CoxIn the news

Chef Tyler Day accepts an award at the Rare Disease Foundation's annual Rare Finds Gala in Vancouver on April 26. The award marks 5 consecutive years of commitment and participation by Tyler and his partner, Chef Dan Olson of Railtown Cafe.

Kyle Anderson is the owner of two Browns Social House restaurants in White Rock and South Surrey, BC. His newest location opened last week at Grandview Corners (160th St. and 24th Ave). When Kyle decided to have a live staff training exercise at the new location, he invited dozens of family and friends of his staff to attend the event along with his own extended family & friends. Kyle picked up the food and beverage tab and collected tips and donations from the crowd, which he then donated to the Rare Disease Foundation. He personally topped up the donation to $5,000 and is seen here presenting the cheque to Executive Director David Cox.

Photo of David CoxOffline
April 2, 2018

CBC Radio Interview on Medical PTSD

David CoxIn the news

Have a listen to our Board Chair, Isabel Jordan being interviewed on CBC Radio about medical PTSD and it's relationship to parents and patients affected by rare disease.

Photo of Isabel JordanOffline
November 20, 2017

Benefit Brew from Phillips Brewing

Isabel JordanIn the news

We're a top 10 finalist in Phillips Brewing and Malting Company Benefits Brew contest and we need our community to click us to the top!

Photo of Isabel JordanOffline
November 2, 2017

10th Annual Lace Up for Kids! - how to participate

Isabel Jordan

It's almost time for LaceUp - here are some tips on how to participate for this wonderful annual event!

Load More

CTV National News: Helping connect the dots

CTV National News: Helping connect the dot

Avis Favaro February 28th 2014
Global network launches in Ottawa to help doctors and patients identify rare genetic disorders. explain.

Juan Flechas is honouring his deceased brother Cristian David by competing in the Mont Tremblant IronMan. Check out his short video here!

This morning Dave Proctor started his 66 day journey across the country and we need you to help him along the way. Participate in person at one of Outrun Rare events being held along the way or virtually by submitting a video that will encourage him to keep on running across the country.

Fund Development and Community Engagement Coordinator

Photo of David CoxOffline
June 22, 2018

CTV National Interviews Dave Proctor

David CoxIn the news

Interview with Dave Proctor of Outrun Rare...the cross Canada record breaking attempt that begins June 27 in Victoria, BC!

This summer Dave Proctor will be running across Canada to raise funds for the Rare Disease Community his family is a part of. He is appealing for our help to get him moving every morning. Here's your chance to be a part of it!

Photo of David CoxOffline
May 10, 2018

Railtown Cafe Award

David CoxIn the news

Chef Tyler Day accepts an award at the Rare Disease Foundation's annual Rare Finds Gala in Vancouver on April 26. The award marks 5 consecutive years of commitment and participation by Tyler and his partner, Chef Dan Olson of Railtown Cafe.

Kyle Anderson is the owner of two Browns Social House restaurants in White Rock and South Surrey, BC. His newest location opened last week at Grandview Corners (160th St. and 24th Ave). When Kyle decided to have a live staff training exercise at the new location, he invited dozens of family and friends of his staff to attend the event along with his own extended family & friends. Kyle picked up the food and beverage tab and collected tips and donations from the crowd, which he then donated to the Rare Disease Foundation. He personally topped up the donation to $5,000 and is seen here presenting the cheque to Executive Director David Cox.

Photo of David CoxOffline
April 2, 2018

CBC Radio Interview on Medical PTSD

David CoxIn the news

Have a listen to our Board Chair, Isabel Jordan being interviewed on CBC Radio about medical PTSD and it's relationship to parents and patients affected by rare disease.

Photo of Isabel JordanOffline
November 20, 2017

Benefit Brew from Phillips Brewing

Isabel JordanIn the news

We're a top 10 finalist in Phillips Brewing and Malting Company Benefits Brew contest and we need our community to click us to the top!

The Bridle Bash Foundation, based in Toronto, Ontario has surprised us with an extremely generous $60,000 donation in support of our microgrant rare disease research program.

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